lisa: there is no cure for microcephaly. onceyou are born with microcephaly; it’s a long lifetime birth defect. lisa: there is no cure, there is no medicinefor it, you can’t reverse it. comm: with the recent outbreak of zika virusin south america and its possible links to microcephaly making headlines, lisa koltayand her son daryle are packaging up donations to send to affected families. daryle: for the microcephaly kids. they needthem. interviewer: why did you decide to do it? daryle: because after they have been throughyou know, it’s really difficult.
lisa: he wants to help the mothers and helpthe children and i think that’s very special and we want to help him serve that purpose. comm: babies born with microcephaly have smallerheads than average and can experience incomplete brain development. comm: daryle was born with the condition 19years ago. and the recent news coverage has started his family wondering what might havecaused it. barry: i remember first hearing about it,i think early december. i had seen an article and i was like wait a second, what is this. barry: because i have never heard microcephalyin any news stories. i was like what is this.
i started reading, i said oh my god. barry: i remember mom saying, you know, theynever really found a reason why daryle is like this. lisa: they ran tests on daryle, couldn’tfind out what caused the microcephaly. it’s always been a mystery. lisa: there is suspicious about the zika virus.when i was pregnant with daryle, i got bit several times, didn’t think anything ofit. i did develop a rash on top of my feet. i fell ill, a little ill. lisa: microcephaly has always been in thedark and with the zika virus, you know and
the possible link, we keep track of it. lisa: it could be a possibility to tell darylegot his birth defect and might have an answer. comm: daryle didn’t speak for the first7 years of his life; expressing himself through biting, kicking and screaming. comm: he currently has the iq of an 8 yearold but will never be able to live independently. interviewer: daryle can you tell us what youlike do with your mom? daryle: everything. lisa: we do everything together, don’t wedaryle? daryle: yeah.
lisa: we are like twins. we are always together,24/7, huh? interviewer: is there anything you find tough? daryle: everything is tough. everything. lisa: he is a true fighter. he is a toughcookie. he has worked extremely hard with the language and speech therapy and occupationaltherapy. lisa: he graduated high school on specialdiploma. i am extremely proud of daryle. he has worked very very hard. he does not giveup and he is a fighter. patrick: the hardest part is trying to educatepeople and get people to really realize and not make fun of him.
patrick: you know, you go to the mall or somewhereand someone wants to make fun of child, it’s really hard. microcephaly is really hard. lisa: people still stare and look and askyou know what’s wrong. lisa: the mushroom haircut, i gave that tohim to add volume to his head so people wouldn’t stare at him all the time. interviewer: do you feel different from otherpeople? daryle: yeah. i do. interviewer: what makes you different? daryle: microcephaly.
interviewer: how? daryle: every time, you can’t control it.you try and try. daryle: only way you make yourself happy issongs or jewellery. that’s all it takes. interviewer: tell us about the concentrationit takes to do this daryle. daryle: oh, it takes hours and hours and hoursto do it. you got to have practice, if you want to do jewellery. comm: now, the family has launched an onlineappeal to raise awareness of microcephaly and to help daryle continue his charitabledonations. lisa: daryle really loves to help people andwe feel that this is his purpose in life.
daryle: with the microcephaly, the zika, whateveryet money is all it takes.
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